Welcome to the website for The Haemophilia Foundation of New South Wales.

For over 50 years the HFNSW has been caring for people with Haemophilia and Von Willebrand Disorder in NSW.  While specialist doctors and nurses provide the medical and clinical care for our members, we provide everything else – financial assistance, physical & emotional support and advocacy on behalf of our members and their families.  To join the HFNSW click here

The HFNSW is a volunteer, not for profit organization comprised of both people with haemophilia, von willebrand and other bleeding disorders, or their parents.  Some of the services we provide are:

-an annual camp – free of charge to people with bleeding disorders and their families.
-education and assistance to members with Hepatitis C.
-financial assistance to members in areas such as footwear, travel and education & training for employment opportunities, grants.
-provide tutors and entertainment to members who require extended hospitalisation.
-information and social activities for members and their families.
-representation to state and federal governments on behalf of members.
-regular communication with members in the form of a quarterly newsletter.
-rural visits to areas of NSW where there are no specialists.
-information about specialist care and related services for our members.

The HFNSW does get some government funding, but we rely on donations to be able to assist our members.  If you want to know how you or your organization can support the HFNSW please feel free to contact one of our executives and we would be happy to speak to you. For charitable and community groups we are happy to supply members to make a presentation to the next meeting of your organization.

 

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