Items tagged 'Personal stories'

Paul talks about his career

12 June 2024

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.

Acquired haemophilia – Jenny’s story

11 April 2024

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Growing up with Glanzmann thrombasthenia

28 February 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living with Glanzmann thrombasthenia

28 February 2024

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Finally cured of hep C – Alex’s story

17 January 2024

‘I felt like I had won a million dollars.’ What is it like to be cured of hepatitis C after…

Jake’s liver health journey

17 January 2024

* Jake is not his real name ‘Now that my liver is working better, everything is better.’ Curing hepatitis C…

Youth at the Conference

7 December 2023

Adam, Alan and Cassie talked to HFA about their experiences at the Melbourne Conference in August 2023. It was a great opportunity for young people with bleeding disorders to catch up with each other and hear the very latest information from the experts.

Youth News – My amazing travel adventure

20 September 2023

Personal stories, Travel, Young people

Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!

Family & Community Camps

20 July 2023

The importance of our camps for children and families cannot be underestimated. At these camps, children connect with others going…

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Haemophilia Foundation NSW

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Haemophilia Foundation New South Wales acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.