Items tagged 'Rare bleeding disorders'

Acquired haemophilia – Jenny’s story

11 April 2024

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Growing up with Glanzmann thrombasthenia

28 February 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living with Glanzmann thrombasthenia

28 February 2024

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Living life actively with VWD

19 July 2023

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Rare and embracing independence

28 February 2021

Belinda talks about her journey to tackle life independently with factor X (10) deficiency.

Rare and embracing independence

28 February 2021

Belinda spoke with HFA about her journey to tackle life independently with factor X (10) deficiency.

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